Rare Disease Advisory Council - 10/30/2026
Notice of Public Meeting
The Rare Disease Advisory Council
will meet
Friday, Oct. 30, 2026, 3-5 p.m.
in the
Yoho Executive Board Room
Indiana Department of Health
2 N.Meridian St.
Indianapolis, IN 46204
Meeting ID: 281 505 913 912 761 0
Passcode: nX2EE7zY
Dial in by phone
317-552-1674
Phone conference ID: 923 602 550#
Member NameTitleAppointing AuthorityAppointment DateExpiration Date
Wade Clapp, MD, Chair - Physician - Governor - 10/02/2025 - 06/30/2029
Lucy Paskus, RNNurse - Governor - 2023 - 06/30/2029
Douglas Cipkala, MD - Physician - Governor - 2023 - 09/30/2027
Michael Busk, MD - Physician - Governor - 2023 - 06/30/2029
Laura McLinn - Caregiver - Governor -2023 - 09/30/2027
Mindy Cameron - Patient - Governor - 2023 - 06/30/2029
Hannah Denney, PharmD - Pharmacist - Governor - 2026 - 06/30/2029
Patricia Smith - Pharmaceutical Representative - Governor - 10/21/2025 - 06/30/2027
Robyn Spoon - Advocacy Organization Representative - Governor - 10/02/2025 - 06/30/2029
Barbara Calhoun - Research Institute Representative - Governor - 11/05/2025 - 06/30/2029
Holly W. Lambert - IDOI Commissioner - Governor - Ex-officio - Ex-officio
Audrey Frenzel - Indiana Medicaid Director - Governor - Ex-officio - Ex-officio
Carl Ellison - President and CEO, Indiana Minority Health Coalition - Governor - Ex-officio - Ex-officio
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